Welcome to the A2A Wolfram Syndrome Advocacy Resource Center (ARC), an outreach project of the nonprofit Adversity 2 Advocacy Alliance, aiming to help individuals impacted by Wolfram syndrome step into Wolfram syndrome advocacy.
We hope you’ll be inspired by our A2A Advocates impacted by Wolfram syndrome, and we invite you to listen to our A2A Spotlight features and A2A 1-on-1 interviews sharing powerful stories of how individuals impacted by Wolfram syndrome are turning adversity into advocacy.
While you’re here, we hope you’ll join our Wolfram Syndrome Messages of Hope campaign. Give hope. Get hope. All in 30 seconds. And if you’re interested in sharing YOUR story with the help of one of our professional journalists, let us know!
Oh, and please be sure to add your name to our Wall of Allies, so you can show your support for our advocates. If you’d like, we’ll also send you our free monthly e-newsletter.
Meet our A2A Advocates
Stephanie Snow Gebel
Stephanie Snow Gebel Adversity: Daughter diagnosed with Wolfram syndrome Advocacy: Founded The Snow Foundation to fund trials, provide support and resources "My greatest priority is to be a strong voice for rare disease and to provide hope for my daughter,...